Can anda help with awareness of cloacal exstrophy? We need help with research.I adopted a 4 tahun old little boy who was born with this terrible birth defect.

We live in Huntingdon,Pa. I was Braxtons foster mom for 3 years and now I adopted him. I know anda have been in Huntingdon,so i was hoping that anda are such a big bintang maybe anda could help raise awareness.